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3 ways that facial difference helps my son

3 ways that facial difference helps my son

You may or may not know that my son Harry was born with a facial difference called Goldenhar Syndrome in 2005. For him, this meant that he was born with no eye, eye socket, ear, nostril and a short, underdeveloped jaw all on his left-hand side. Life hasn’t been easy...

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Facial difference; Causes and Impact

Facial difference; Causes and Impact

In the midst of a global pandemic, awareness of anything other than our own mental wellbeing and the health of those we know, and love has understandably not been the same priority that it was pre-covid. However, today I wanted to just remind people about the causes...

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Facial difference education; Hope Vs Reality

Facial difference education; Hope Vs Reality

Facial difference is a topic you may never have discussed when the opportunity arose. Unlike other conditions, facial difference can make people feel quite uncomfortable at times. Maybe its because we are intrinsically curious about differences and the urge to look...

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Helping children to understand facial differences – 7 tips.

Helping children to understand facial differences – 7 tips.

When my twins were born prematurely I had no idea that Harry would have a rare cranio-facial condition called Goldenhar syndrome. I didn’t cope very well with the news that my son had a facial difference in the early days, particularly as we weren’t sure of the longer...

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Are people staring? 7 ways to deal with it.

Are people staring? 7 ways to deal with it.

I never really noticed people staring at each other before I had a baby with half a face (yes, I’m blunt). The reaction we got in the early days almost made me a recluse. I was hyper sensitive to every glance and whisper. They may not have even been aimed at us but I...

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